Columnist Sherry Toh is taking up a new creative project, even if it demands patience: making videos about makeup, aimed at ...

Columnist Connie Chandler encourages patients and caregivers to share their positive stories with their doctors.

A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Richard Kravitz, MD, shares why self-advocacy matters in healthcare and how to ask questions with confidence, clarity, and compassion.

While muscle relaxants can be a valuable tool in managing the pain, discomfort, and spasms associated with spinal muscular atrophy (SMA), the combination of SMA and muscle relaxants in the summer may ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...