Cystic fibrosis care is changing quickly — with better treatments, longer lives, and new tools like telehealth. This is pushing us to rethink what high quality, individualized care should look like.

While complications from cystic fibrosis created a rocky start to Noelle’s story, our faith has kept us strong and been a guiding light through the darkness.

One of the hardest parts of working full-time with cystic fibrosis is the quiet exhaustion of navigating systems and expectations that were never designed for chronic illness.

I’ve survived to the age of 63, searching for air with cystic fibrosis. When I was born in 1963, I looked like a perfect, beautiful 6-pound precious bundle of joy to my two young parents, who were ...

I was born in Germany, and when I was 6 months old, my mother flew me to Washington, D.C. where I was diagnosed with cystic fibrosis. Growing up, I went to school just like any other student, but of ...

For years, I carried a collection of unexplained health issues that never quite added up. I didn’t cough, I didn’t wheeze, and nothing about me fit the traditional picture of cystic fibrosis. So when ...

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

Lack of CF awareness, expertise, and health care infrastructure, especially in low- and middle-income countries, may prevent people living with cystic fibrosis from receiving timely and appropriate ...

I remember the exact moment we realized Trikafta wasn’t the miracle drug we hoped it would be. Our 5-year-old daughter, Olivia, had become inconsolable and withdrawn, and was saying words that no ...