Senses Lost: The Impossible Dilemma of Usher Syndrome, and Its Possible Solutions
Senses Lost: The Impossible Dilemma of Usher Syndrome, and …
Jun 15, 2017
mit.edu
Usher syndrome: for patients - Gene Vision
Usher syndrome: for patients - Gene Vision
Apr 20, 2022
gene.vision
On World Sight Day, we introduce Sophia, who lives with Usher syndrome, the leading genetic cause of deafblindness. Sophia is grateful for HHF's research toward better treatments and cures for Usher. | Hearing Health Foundation
2:30
On World Sight Day, we introduce Sophia, who lives with Usher synd…
1.1K viewsOct 8, 2018
FacebookHearing Health Foundation
Inside Rebecca Alexander’s Awareness Campaign for Usher Syndrome
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Inside Rebecca Alexander’s Awareness Campaign for Usher S…
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TODAY.comMeghan Holohan
48K reactions · 4.9K comments | Just because I have usher syndrome doesn’t make me any less of a human being, my disabilities does not define who I am as a person. #deaf #cochlearimplant #americansignlanguage #ushersyndrome | Ronnie McKenzie | Facebook
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48K reactions · 4.9K comments | Just because I have usher syndro…
222.8K views3 weeks ago
FacebookRonnie McKenzie
Spotlight on Usher syndrome 👁️‍🗨️ Protactile sign language and haptics are great for communicating with the DeafBlind community! Thank you, Kayla (@InclusionStartsNow on Instagram and TikTok), for spreading awareness and education this #DeafBlindAwarenessWeek! #UsherSyndrome #DeafBlind #ProtactileSignLanguage Video Description: First clip of a man speaking in front of a black backdrop. Second clip of Kayla standing indoors and speaking directly to the camera. | Foundation Fighting Blindness
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Spotlight on Usher syndrome 👁️‍🗨️ Protactile sign language and hapti…
33.3K viewsJun 28, 2024
FacebookFoundation Fighting Blindness
Living with a progressive disability like Usher syndrome means I’ve spent A LOT of time in doctors’ offices. The visits often feel heavy so I try to bring joy wherever I can. Even if it means borrowing the doctor’s mask, gloves, and dancing like Michael Jackson while I’m waiting for the doctor with my friend. I’ve learned that joy can be a great antidote for uncertainty and that they can exist at the same time. You don’t have to wait for things to feel easy to let yourself feel good in the momen
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Living with a progressive disability like Usher syndrome means I’ve s…
5.3K views5 months ago
FacebookRebecca Alexander
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Watch how to sign 'usher's syndrome' in American Sign Lang…
Dec 28, 2018
signasl.org
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10-month-old Charlie Sinclair recently marked an amazing miles…
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40 reactions · 22 shares | Usher syndrome impacts as many as 25,…
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'It changed all my preconceptions': Meet the boys living with Usher sy…
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